Weepshep
Premium
join:2007-10-01
Heidrick, KY
clubs:
| [Update] Update on dad and me
Hey Family 
Has been a while since I have had time to catch you up.
Ok I am now living with my dad around the clock around the week so to speak... I get him up and take him to Friends & Companions during the week while I go to work. Some times he loves it some times he hates it. You know typical Alzheimer's day. He has now been diagnosed with Advanced Alzheimer's. We just have him on Seroquel at the moment to get his sleep regulated. Stayed up for a week straight before this and I liked to fell over. Plus his hallucination's was driving him mad with fear. But getting some sleep has helped that allot.
Other medicine will start in a week or two.
Ok so th family deal has not worked out. Brother stopped staying week ends for me after the first three weeks. Sister every once in a while will sit a few hours on a weekend so I can have a break but that is rare. My wife, She is the BEST. She picks him up brings him to his place and fixes him supper my 13yr old boy mows and my 14yr old care keeps him company till I can get back from work then they go home 
I really miss being with my family. That maybe the hardest at times.
Dad-- one moment we will be the best of pals and the next he is cussing me out and threatening me. And the stories that he believes are true are repeated over and over and over again. It is enough to drive anyone mad. And at times with no sleep and no time away I myself will get fired up and fire back regretting every time.
I have no Idea why I am even here any more.....
I am taking all the abuse all the suffering. Every one else has left us to deal with it. Put him in a nursing home they all say but make it possible for us to keep the house and everything............
No matter how he has treated me while growing up and seeing it over and over again now I can leave him alone that way...
I take him to church where I pastor. And even then I am ridiculed and bashed because I do not hold to the faith he grew up with but he still hangs in there and I am glad.
But I need your prayers.
I don't know how much longer I can hold out. The lack of my family and every thing is beginning to take its toll on me.
I say the devil is not going to win this battle...
Something I haven't told any one has came in a different form to torment me.
Last year I was having trouble -- Anger - doubt - fear - even suicidal thought was on my mind bad and my wife helped by getting me in to my doctor. He done some test even though I knew the answer and told me I was having serious symptoms of Bipolar and put me on you guessed it -Seroquel- I took it for about a month and decided I was not taking it any more. That God could fix any thing I had and he did. I have been ok ever since. Now This! I don't have to deal with myself anymore but Now my dad is suffering and I along with him.
I know God can take care of anything .. But I really need all the back up I can get.
Sorry I rant so much this time but I just needed to get it out of my thoughts.
Thank you for listening.... |
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rfhar
The World Sport, Played In Every Country
Premium
join:2001-03-26
Buicktown,Mi
clubs: | Please be sure you are taking care of your own health. You have accepted one huge responsibility that could ruin any mans health.
I'll pray for you daily. |
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Vtblues
if you can't get out of it, get in to it
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join:2006-05-29
Brookfield, VT
clubs:
 ·Verizon Wireless B..
 ·HughesNet Satellit..
1 edit | reply to Weepshep
Be very very careful. I'm saying this as a retired mental health worker and a person who has a mother with Alzheimer's.
being the only one who actually is stepping up is admiral but can eat you up.
Taking chances with not treating bi-polar can turn tragic.
I too will pray for you, but please, look in to an Alzheimer's support group and listen to loved ones looking out for your wellbeing, they may have more insight than you.
As for those who have plenty of advice "Put him in a nursing home but make sure you don't lose the house and everything" They obviously don't know the facts of how this works enough to give you competent advice.
--
I'm folding and crunching to try to help prevent stories like »Update on my son who has cancer
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sortofageek
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join:2001-08-19
Valhalla Dr
clubs:
 ·Comcast
Host:
Team Helix
Distributed Comput..
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| reply to Weepshep
Ron has it right. Please take care of you. Alzheimer's is such a cruel disease. My heart goes out to you. Know prayer is lifted from here.
--
Join Team Helix * I am praying for these friends . |
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dandelion
Premium,MVM
join:2003-04-29
Germantown, TN
clubs:
·Comcast
| reply to Weepshep
My Mom with late mid stage lives with me, she would also be in sundowners if not for some medicines she receives. It is rough at times but also rewarding knowing she is taken care of well. However, a lot have had to eventually place in a nursing home and that is an individual decision of the family...most of the time, simply being unable to deal with the effects of the disease by themselves any longer. This link may be helpful to you .... »seniorjournal.com/NEWS/Alzheimer···Save.htm
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Spare computer cycles can help find answers
Find A Cure!
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Vtblues
if you can't get out of it, get in to it
Premium
join:2006-05-29
Brookfield, VT
clubs:
·Verizon Wireless B..
·HughesNet Satellit..
| reply to Weepshep
I feel I should add that after over five years of providing my Mom with a caregiver and family also doing what we could we had to make the decision several weeks ago to have her go to a nursing home.
We were fortunate enough to move assets around when she was first diagnosed to protect them and also have a fair amount to provide for anything she needs that isn't covered set aside.
As awkward as it can be I encourage anybody with aging parents to get financial counseling to keep from losing everything they spent a lifetime working for.
We were doubly blessed, my Mom loves where she is staying, she has much more of a social life than she had had for the past several years and we have the comfort of knowing we had time to find a place that would give her excellent care.
--
I'm folding and crunching to try to help prevent stories like »Update on my son who has cancer
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suprleg
Abracadabra
Premium
join:2004-05-06
Garden Grove, CA
clubs:
·RoadRunner Cable
| reply to Weepshep
I deeply admire your courage and commitment to your father, he's very lucky to have such a loving and devoted son. That said, I also agree with everyone's concern that you take care of yourself as well, certainly your father needs you strong and well for him. As for the, " Put him in a nursing home they all say but make it possible for us to keep the house and everything............" comments, I can't tell you how much that infuriates me and I must say the opinions of family members that make those comments mean little or nothing to me. Your father worked his entire life to accumulate whatever monies he has and of course it should be put towards his care now.
I'll continue to pray that things work out as best they can during this most difficult time for you.
--
Team Discovery
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Santa Fe
I think therefore I Fold.
Premium,ExMod 2002-7
join:2000-08-22
Freight Yard
clubs: |  reply to Weepshep
Prayer & MoJo being sent! |
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Weepshep
Premium
join:2007-10-01
Heidrick, KY
clubs:
| reply to Weepshep
said by Weepshep  :Hey Family Has been a while since I have had time to catch you up. Ok I am now living with my dad around the clock around the week so to speak... I get him up and take him to Friends & Companions during the week while I go to work. Some times he loves it some times he hates it. You know typical Alzheimer's day. He has now been diagnosed with Advanced Alzheimer's. We just have him on Seroquel at the moment to get his sleep regulated. Stayed up for a week straight before this and I liked to fell over. Plus his hallucination's was driving him mad with fear. But getting some sleep has helped that allot. Other medicine will start in a week or two. Ok so th family deal has not worked out. Brother stopped staying week ends for me after the first three weeks. Sister every once in a while will sit a few hours on a weekend so I can have a break but that is rare. My wife, She is the BEST. She picks him up brings him to his place and fixes him supper my 13yr old boy mows and my 14yr old care keeps him company till I can get back from work then they go home I really miss being with my family. That maybe the hardest at times. Dad-- one moment we will be the best of pals and the next he is cussing me out and threatening me. And the stories that he believes are true are repeated over and over and over again. It is enough to drive anyone mad. And at times with no sleep and no time away I myself will get fired up and fire back regretting every time. I have no Idea why I am even here any more..... I am taking all the abuse all the suffering. Every one else has left us to deal with it. Put him in a nursing home they all say but make it possible for us to keep the house and everything............ No matter how he has treated me while growing up and seeing it over and over again now I can leave him alone that way... I take him to church where I pastor. And even then I am ridiculed and bashed because I do not hold to the faith he grew up with but he still hangs in there and I am glad. But I need your prayers. I don't know how much longer I can hold out. The lack of my family and every thing is beginning to take its toll on me. I say the devil is not going to win this battle... Something I haven't told any one has came in a different form to torment me. Last year I was having trouble -- Anger - doubt - fear - even suicidal thought was on my mind bad and my wife helped by getting me in to my doctor. He done some test even though I knew the answer and told me I was having serious symptoms of Bipolar and put me on you guessed it -Seroquel- I took it for about a month and decided I was not taking it any more. That God could fix any thing I had and he did. I have been ok ever since. Now This! I don't have to deal with myself anymore but Now my dad is suffering and I along with him. I know God can take care of anything .. But I really need all the back up I can get. Sorry I rant so much this time but I just needed to get it out of my thoughts. Thank you for listening.... I am sorry All.
I was just having a selfish moment and spouting off at the mouth...
some times this helps me get back to focus on why I am taking care of him. I have allot to be thankful for and have no reason to complain.
Like I was telling the wife today. Can you imagine how it must feel to relive the death of your loved ones and friends every two to three days. Think of the heart and anguish that must put on a Alzheimer's victim like my dad who does this over and over again setting crying asking why I didn't tell him about it yet and him thinking he even missed the funeral.
So you see even in the loneliest times we are Blessed - Really Blessed.
Have a great Shabbat.
And we at Fellowship will be praying for all here. |
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SueN
Premium
join:2000-08-22
Lost
clubs:
| reply to Weepshep
I real feel for you. It truly is a sad situation.
It is so draining on the care giver. One does not
like to think about the dangers that can arise.
It might be time to check out the link I posted in
your other post.
»Re: Another home in Fold
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usa2k
Please PRAY for Rebekah
Premium,MVM
join:2003-01-26
Canton, MI
clubs:
 ·VOIPo
·WOW Internet and C..
·Broadvox Direct
| reply to Weepshep
Re: [Update] Update on dad and me
Prayers going out ...
A friend of ours runs a few Retirement Homes in Canada. She has had Alzheimer residents, and her husband's mother was afflicted by it. One thing they found with the Mom is if the surroundings change, it can be very confusing. At the Rest Home they had to put a second latch and a bell to ensure residents didn't wander outside.
It is hard to see someone you have known so well, and they see you as a stranger ... this will be a rough road ... prayers, faith, and hang in there!
--
Jim -- USA2K, VoIP since 12/2002, Packet8 since 12/2006. VOIPo in Beta, former Vonage . . .
FAH-Tool Monitor |
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lonnyb
lurking no longer
Premium
join:2004-01-25
Elizabethtown, KY
clubs:
·Comcast Formerly ..
| reply to Weepshep
Re: [Update] Update on dad and me
You have my prayers as does your family.
Don't let your love for your father be tainted by his Alzheimer's affliction.
When we are in an airplane we are always told to put a mask on our own face before assisting others. This can be applied to your case: take care of yourself first, or you won't be as useful to your father.
Taking care of ailing parents generates approval from God, which is ALWAYS good for our future. Honoring our mother and father is the only commandment that has good results for the future.
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I know when to fold 'em *ALL THE TIME!* »Team Helix |
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