simplykristi
Cancer Sucks
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Re: [Serious] Good Thoughts and Pryers for myt Parents
We are all holding up as best as we can. Two of my brothers and I have admitted to crying to one another. Soooo many emotions running thru our heads right now. I am glad that we have one another.
Kristi
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simplykristi
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Update on Dad
Hi All,
I saw my dad this morning. I did not get to visit with him much. He has not had his MRI yet. I don't know what the hold up is. One of the oncologist's associates came in while Mom and I were there. The oncologist wants to start radiation right away to relieve some of the pain. They are just waiting for the MRI to be done. It sounds like Dad could get a radiation treatment or two over the weekend.
Kristi
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simplykristi
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Nighttime Update on Dad
Hi All,
I just got home from visiting Dad at the hospital. He had his MRI and his first radiation session this afternoon. He went downstairs for his MRI at 12:50 PM and did not get back up to his room until 6:20. Preliminary results show no mets in the brain. The MRI was really indepth as it took 2 1/2 hours. They did an MRI of the brain and spine. They needed the spine MRI so they could begin radiation right away. He went from the MRI to radiation. His radiation will take five minutes. If he is out of the hospital by Monday, he goes at 2:30 for his treatment. Dad did not tell us how many radiation treatments he will get. I guess we will find out Monday. I need to eat and then head for bed. I am hungry and tired.
Thanks for all the thoughts, prayers, mojo, and everything! You don't know how much they are appreciated!
Kristi
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Dominokat
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Re: [Serious] Good Thoughts and Pryers for myt Parents
I think it is safe to say that each of us are here for you. If you ever need to reach out, please know we all are here for you.
We will continue to pray for you as long as you need us too.
Lots of hugs---
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simplykristi
Cancer Sucks
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Just got a call from my dad. Instead of waiting to start chemo, the docs have decided to start chemo on Monday. I need a big stiff drink right about now.
Kristi
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squirt
cacatne alces in silvis?
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simplykristi
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Late Night Update
I went up and visit my dad late this afternoon and early evening. First of all, he really wants to come home. We are having problems with him telling the nurses everything. He's stubborn as all get out. Smile The docs want to start chemo Monday if he is still inpatient. He does have a spot on his skull but it has not penetrated the brain. If he is released before Monday, the doc will call us to set up an appt. My dad still has pain and there is no way they can let him come home. I saw him get winded walking from his bed to the bathroom and back. I told Mom he needs oxygen here at the house. I can't thank the nurses enough for the great care they have given my dad. And for answering my questions. My mom has pretty much left it up to me to ask the questions. I need to make myself a mental note to ask about the dose of morphine my dad is getting by pill.
My youngest brother told me that he and dad had a nice visit this afternoon. My brother said he was at peace. I am the same way... I have reached peace. Sure, it will be tough when my dad passes away. We are taking it a day at a time. We are living in the moment.
What is sooo funny is the amount of people who go and visit my dad. People are there thru the day and always in the evening. I think that my dad had a steady stream of visitors today from 3 til after 8. I haven't seen other patients get visits like my dad. I've spent quite a bit of time at the hospital the last two days. I am glad that I can do it.
Kristi
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usa2k
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|  Re: Early morning well wishes!
said by simplykristi  : I haven't seen other patients get visits like my dad. That says much about how he has touched the lives of others! And that is awesome. My dad seemed to have that kind of network of admirers.
Morning prayer going up in a moment! 
(For you, your family, and especially your mom and dad.)
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suprleg
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Re: [Serious] Good Thoughts and Pryers for myt Parents
My best wishes and prayers are going out to you, Kristi.
I'm glad to see you're staying strong and have a good attitude as your family will continue to need both. I went through this same experience with my Dad and know how tough it is. Continued good thoughts headed your way.
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marica69
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Kristi,
I am saddened by your family situation. My Father in law passed away from cancer nearly 30 years ago and my brother in law just last year. I believe that they and their families (us as well as immediate) had found peace before it happened and while it did not make it go away, it was at the least, a lasting source of strength and courage. I will add you and your family to our families prayers, both that this cup may be lifted and that you will have the strength and courage that you need going forward.
Donny |
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delenn13
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Still thinking about you, Kristi, from Ontario. Sorry, I know, doesn't cut it but just know we all here for you.  |
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simplykristi
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Dad is Home!
Jo All,
We got a call before noon from dad saying I am coming home. It's nice to have him home. However, it makes things tough because we don't have anything set up for chemo yet. Dad is suppose to have radiation too. Last we heard, he was suppose to be at the outpatient center for radiation at 2:30 tomorrow. Hopefully we will get a call from the oncologist's office early tomorrow morning with a lot of info.
I have a really big question... I think that my dad could really benefit from supplemental oxygen at times. Does anyone know the Medicare rules for paying for it? I think that we could call the benefits man for the union about the secondary insurance. The nurse seemed to think that it was 82% on room air. My dad runs in the low 90s without supplemental oxygen and in the mid 90s with it.
Kristi
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simplykristi
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Re: Early morning well wishes!
Jim,
Everyone was sooo nice to my dad at the hospital. I left a little note for the nurses who took care of my dad. They did a fabulous job! My dad has touched a lot of lives even in the three days he was in the hospital. His boss came up to see him. The phone never stops ringing.
Kristi
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usa2k
Please PRAY for Rebekah
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clubs: | Re: Early morning well wishes!
That sounds like great medicine his friends are providing!
Still praying and expecting great things yet to be! |
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simplykristi
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Monday's Update
Today starts a long week of appointments for both Mom and Dad. I get to go to all of their appts. this week.
Today we have radiation for Dad. On Thurs., we meet with the oncologist. If he had stayed in the hospital, Dad could have started his chemo today. My Dad is going to be a pill. I always wondered where I got my control freak ways from... Now I know. LOL
I have to go because no some members of my family need help with medical terminology. I am pretty good with it. I took a med term class at work and got 100% on the final.
Kristi
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opus74
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simplykristi
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Monday Evening Update
Thanks everyone!
My youngest brother and I took Dad to his radiation treatment today. Everyone we meet has been so nice to us. There is usually two of us when Dad goes to appts. I had to reschedule some of my dad's radiation treatments (moved the times) them due to scheduling conflicts. His radiation will end next Wed. He will have had a total of ten treatments. After talking to one of the radiation docs, we now know why the oncologist is holding off on chemo. They are radiating a large area on Dad. If they started chemo right now, it would limit the amount of areas they could radiate. It makes absolute sense to me.
My youngest brother and I had a little heart-to-heart talk. We are going to make the most of the time that Dad has. We want to make it count BIG TIME.
Tomorrow will be hectic.. I changed Dad's radiation appt. to 11:30 AM. Mom has her bronchscopy at noon. I am sooo glad that everything is in the same building.
Kristi
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simplykristi
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Thursday Update on Dad
Thanks for all the good thoughts, prayers, mojo, and everything! It's much appreciated.
Dad had his sixth radiation treatment this morning. He has four more to go. I have been going with him every time. I get someone to take us since I don't drive. It's nice to know that we can call someone and they can help. That's a big help!
My sister-in-law and I took Dad to his oncologist appt. today. I really like my dad's oncologist. He is very upfront with us. I really like that. My parents and I really like him. We aren't going for a cure... We know that there is no cure for my Dad's cancer. They might be able to get my dad into remission. But the cancer will never go away. We agree that the goal is quality of life. If my dad were younger and in better health, he would go for more aggressive treatment.
The chemo treatment plan:
It will be four cycles of chemo beginning May 27th.
Dad will have a port put in. We are waiting to hear form the oncologist's office to set that up. We should know something today.
Three days of outpatient infusions per cycle. We will try to rotate drivers for that so no one has to take a lot of time from work.
Kristi
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BadHat
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Re: [Serious] Good Thoughts and Pryers for myt Parents
Prayers till cranked. |
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SueN
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Re: Thursday Update on Dad
Still here.......
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