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lonnyb
Blessed Beyond Belief
Premium Member
join:2004-01-25
San Antonio, TX

2 edits

4 recommendations

lonnyb

Premium Member

[Serious] My niece, four-year-old Emily Goff

Click for full size
This is a two-year-old picure of Emily Goff
The condition and symptoms of my niece, Emily Goff, aroused the suspicions of a very astute pediatric doctor who ordered a CT on Monday 30Apr07. The CT scan revealed a golf-ball-sized growth of unknown nature in her brain, cerebellum to be more specific.

Tuesday, the family consulted a neurosurgeon who ordered a MRI (Magnetic Resonance Imaging). The surgeon is of the opinion, based on his experience, that it is fluid filled and not tangled in the surrounding tissue. He thinks it shows a good likelihood of being benign. The surgeon cleared his schedule today for the removal of that growth with a surgery that could possibly last 18 hours. Surgery commenced at 0900 this morning and they isolated the growth at 1300 so the surgery has the possibility of being much shorter than anticipated. I am miles away from the facility at this time and have little knowledge of how things are progressing.

Kosair, the name of the medical facility, has an "Cheer Card" program on their web site: »www.nortonhealthcare.com ··· dex.aspx
Emily would love these cards.

Please pray for this little girl and her family!

Thank you very much!

Emily July 2007 Update
Emily April 2008 Update
February 2009: »[Newsy] My five-year-old niece, Emily Goff

Sunny
Runs from Clowns

join:2001-08-19

1 recommendation

Sunny

Praying for Emily Goff. What a sweet face.

lonnyb
Blessed Beyond Belief
Premium Member
join:2004-01-25
San Antonio, TX

1 recommendation

lonnyb

Premium Member

Thank you, Sorto!!
lonnyb

lonnyb

Premium Member

Emily is going to either ICU or a recovery room.
The growth was cancerous, but one of the best kind, because the
surgeon feels that he was able to get all of it.

delenn13
De gustibus nil disputandum
Premium Member
join:2006-03-02
Ridgeway, ON

1 recommendation

delenn13 to lonnyb

Premium Member

to lonnyb
She is adorable!!! Such expression in her eyes.

Prayers going out to Emily, her family and you, Lonny.

sashwa
Mod
join:2001-01-29
Alcatraz

1 recommendation

sashwa to lonnyb

Mod

to lonnyb
Prayers and mojo heading out to Sweet Emily for as long as she and her family need it.

lonnyb
Blessed Beyond Belief
Premium Member
join:2004-01-25
San Antonio, TX

lonnyb

Premium Member

Thank you, Delenn!

rfhar
The World Sport, Played In Every Country
Premium Member
join:2001-03-26
Buicktown,Mi

1 recommendation

rfhar to lonnyb

Premium Member

to lonnyb
I will keep her in my prayers.

howieh
4 more weeks
MVM
join:2000-08-06
Metuchen, NJ

1 recommendation

howieh to lonnyb

MVM

to lonnyb
Prayers said for Emily and her family.

mouseferatu
Too many cats, Too many mice
MVM
join:2004-03-16
Im not sure

1 recommendation

mouseferatu to lonnyb

MVM

to lonnyb
Will be keeping your family and your little niece in my thoughts and prayers.

I am glad that the surgeon feels that the whole growth is out, and hope that Emily will do very well going forward.

lonnyb
Blessed Beyond Belief
Premium Member
join:2004-01-25
San Antonio, TX

lonnyb

Premium Member

Thank you, everybody!!!

delenn13
De gustibus nil disputandum
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join:2006-03-02
Ridgeway, ON

1 recommendation

delenn13 to lonnyb

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to lonnyb
I am trying to send Emily one of those cards. Anyone else having trouble sending it? I time out and hang right after I select the type of card and hospital. Can't even get to the personal info... etc part.

Maybe I will try to send it later when it is not as busy.

mig
MVM
join:2000-10-26
Anytown, USA

1 recommendation

mig to lonnyb

MVM

to lonnyb
You got it!

Our thoughts & prayers are with your neice Emily and all of her family.

lonnyb
Blessed Beyond Belief
Premium Member
join:2004-01-25
San Antonio, TX

lonnyb to delenn13

Premium Member

to delenn13
It may be swamped. Thank you, everyone, for swamping it!

sashwa
Mod
join:2001-01-29
Alcatraz

1 edit

1 recommendation

sashwa to delenn13

Mod

to delenn13
I was able to get one 2 sent. She should get it tomorrow.


santy
Don't Follow Me, I'M Lost Too
MVM
join:2001-06-10
Wilmington, IL

1 edit

1 recommendation

santy to lonnyb

MVM

to lonnyb
Prayers and MOJO going out to you and your family and to Emily.

Will be sending a card also..

Edit: Card has been sent.

Akasha
OT Queen
Premium Member
join:2006-08-10
Am I lost?

1 recommendation

Akasha to lonnyb

Premium Member

to lonnyb
Emily is in my thoughts. Sending lots of love and light out to her.

suprleg
Abracadabra
Premium Member
join:2004-05-06
Garden Grove, CA

1 recommendation

suprleg to lonnyb

Premium Member

to lonnyb
I pray for a speedy and complete recovery for your niece. Emily and your family will be in my prayers.

lonnyb
Blessed Beyond Belief
Premium Member
join:2004-01-25
San Antonio, TX

4 recommendations

lonnyb

Premium Member

A note from Emily's mother:

Emily just returned to the same room 417. The nurse said her first word was "no!" then I told her that the doctor fixed her head and she said, "oh,no he didn't!" She is heavily sedated, nubain, valium, baclofen, so she is asleep right now. So,there is no problem with her speech.

The tumor was juvenile polycystic astrocytoma fluid cyst little larger than golf ball size. The doctor said he thinks he got it all and he did not need to put in a shunt. This was the best type of tumor and you can look it up on webmd gave better info than the nurse gave me. A 10 year survival for children with her type of tumor is 90% with total tumor removal like Emily, and usually do not require any further chemo or radiation. If you all know, Emily had 2 symptoms; headache while sleeping and when waking, nausea, sometimes vomiting. The pediatrician picked up on these classic symptoms and referred me to probably the best pediatric neurosurgeon in Louisville probably Kentucky. She seemed normal other than that before the surgery but as Dr. Moriarity showed me she was showing signs of water on the brain due to increasing pressure in the brain, the tumor also was interfering with fluid draining into the spinal canal so was life threatening, we walked from his office to the icu at Kosair and Emily thought she was just tagging along she kept saying, can I come too? She had about 2 months of symptoms and the doctor told me most cases are diagnosed after three so we had about a month head start.

All our prayers were answered and God has given Emily a chance to grow up. Don and I were devastated on Monday, but Wednesday morning we had strength to face this situation and be there for Emily. I believe this was prayers, from all over. I have received “Cheer cards” from the nurse’s station from Alaska, to Georgia, Texas and other states. We are humbled by vast prayer response and know that God provided the best opportunities to Emily from early diagnosis, best circumstances for the removal, not near untouchable brain structures, great hospital and good nurses. Lonny, if you would, send to everyone on the list.

woogie
Mrs. Wafen
MVM
join:2001-11-07
Maplewood MN

1 edit

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woogie to lonnyb

MVM

to lonnyb
My best thoughts are with her for a long, healthy and happy life.

squirt
cacatne alces in silvis?
MVM
join:2004-04-27
Out Grazing

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squirt to lonnyb

MVM

to lonnyb
I was so glad to read through the thread and find out that the surgery went well. Prayers and mojo heading out for Emily's recovery.

lonnyb
Blessed Beyond Belief
Premium Member
join:2004-01-25
San Antonio, TX

1 recommendation

lonnyb

Premium Member

Thank you everyone for all the prayers and the "Cheer Cards." As you can read, they meant and will mean a lot to the whole family and to Emily.

dandelion
MVM
join:2003-04-29
Germantown, TN

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dandelion to lonnyb

MVM

to lonnyb
Lots of MOJO sent and I am happy that it worked out so well.

Icarus
CHAOS RULES
Mod
join:2000-11-08
Off Center

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Icarus to lonnyb

Mod

to lonnyb
said by lonnyb:

A note from Emily's mother:

Emily just returned to the same room 417. The nurse said her first word was "no!" then I told her that the doctor fixed her head and she said, "oh,no he didn't!"
Shes fiesty! Thats a good sign! My best thoughts and wishes for a full and quick recovery for Miss Emily!

signmeuptoo94
Bless you Howie
Premium Member
join:2001-11-22
NanoParticle

1 recommendation

signmeuptoo94 to lonnyb

Premium Member

to lonnyb
My heart and prayers go out to this precious little one.

I raised a step daughter with some growths in her brain too, and I know how terrifying it can be. I will hope the best!

Gizmo
Trust Me I'm a Professional
MVM
join:2000-08-19
In Your Mind

1 recommendation

Gizmo to lonnyb

MVM

to lonnyb
Sending prayers and MOJO to your niece and her family.

TDNickell
Premium Member
join:2006-09-26
Federal Way, WA

1 recommendation

TDNickell to lonnyb

Premium Member

to lonnyb
My prayers going out for Emily,and her family!

Digibits
Premium Member
join:2000-09-02
The Hilltop

1 recommendation

Digibits to lonnyb

Premium Member

to lonnyb
What a beautiful little girl! My prayers go out for her healing and for her family to give them a peace in the midst of this storm.

A special prayer to all the medical professionals that she will have nothing less than a total recovery.

lonnyb
Blessed Beyond Belief
Premium Member
join:2004-01-25
San Antonio, TX

1 recommendation

lonnyb

Premium Member

Thank you for your prayers, everybody. My family feels them.
lonnyb

3 recommendations

lonnyb

Premium Member

I am leaving for the 45 minute drive to visit Emily. Yay! It is my turn!