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XaXiS

join:2009-08-15
Canada Eh

[Serious] Sleep Apnea

Anyone here suffer from it and wears a CPAP?
I got diagnosed back in 2002 and I wear a nose mask. When I got my gallbladder out in April I had to take the machine in. They said it was leaking air after the surgery. I cannot see where it is leaking from at all. Is it covered under OHIP to get it looked at?


ArthurS
Watch Those Blinking Lights
Premium
join:2000-10-28
Hamilton, ON
Leaking air? Maybe the mask is leaking air due to a poor fit? Unless you still have a warranty with the unit, you'll have to pay out of the pocket for any repairs, which can be costly depending on what is wrong, maybe you're better off getting a new one. If you need a new machine, then get a current prescription from your sleep doctor, then order it in from the USA (www.cpap.com). It will most likely be cheaper. The copay here in Ontario is absolutely ridiculous, and often more than what the machine is worth, but alas, the government likes giving lots of money to medical suppliers!

XaXiS

join:2009-08-15
Canada Eh
reply to XaXiS
The mask is new. I have no idea how they say it is leaking to be honest. Next year I willl be able to get a brand new one. It's weird that the government partially funds a cpap machine but not the mask.


ArthurS
Watch Those Blinking Lights
Premium
join:2000-10-28
Hamilton, ON
said by XaXiS:

It's weird that the government partially funds a cpap machine but not the mask.

Not weird, just usurous of sleep apnea sufferers, filling the pockets of the providers who know they have a virtual monopoly of the market with a complicit government. You'd be surprised how much cheaper they are south of the border. Saved hundreds of dollars on a travel machine for myself. A few manufacturers have tried to clamp down on cross border sales, so I simply have them ship to CBI in Niagara Falls, and I then bring it across the border duty and tax free.


Thane_Bitter
Inquire within
Premium
join:2005-01-20
Reviews:
·Bell Sympatico
reply to XaXiS
I know little about these machines, however perhaps the leak is internal and it is not providing enough pressure to keep your airways properly inflated.

A bit of soapy water along the hose and fittings on the mask might show any pinhole leaks.

I cannot find any information on repair or servicing costs, however they may offer assistance if the machine is broken. Might be worth calling and inquiring what can be done.
quote:
»health.gov.on.ca/en/public/progr···pap.aspx
What if I need to replace my equipment?
ADP may contribute towards the cost of a replacement if your equipment is no longer working, is no longer under warranty and cannot be repaired. You must continue to meet the ADP eligibility requirements and you will need a new ADP application form signed by the doctor.


DKS
Damn Kidney Stones
Premium,ExMod 2002
join:2001-03-22
Owen Sound, ON
kudos:2
reply to XaXiS
said by XaXiS:

Anyone here suffer from it and wears a CPAP?
I got diagnosed back in 2002 and I wear a nose mask. When I got my gallbladder out in April I had to take the machine in. They said it was leaking air after the surgery. I cannot see where it is leaking from at all. Is it covered under OHIP to get it looked at?

If you aren't having it checked by a respiratory technologist, it can get out of whack. I have apnea and have used a CPAP for fifteen years. You will pay for repairs, but in my experience, they are quite generous with warranty repairs (don't fix it with duct tape) and parts aren't always expensive. BTW, you qualify for a new machine under ADP every five years. But you have to go back to your sleep specialist. My last co-payment was $200.
--
Need-based health care not greed-based health care.


DKS
Damn Kidney Stones
Premium,ExMod 2002
join:2001-03-22
Owen Sound, ON
kudos:2
reply to Thane_Bitter
said by Thane_Bitter:

A bit of soapy water along the hose and fittings on the mask might show any pinhole leaks.

The only fix is to replace the hose.
--
Need-based health care not greed-based health care.


DKS
Damn Kidney Stones
Premium,ExMod 2002
join:2001-03-22
Owen Sound, ON
kudos:2
reply to ArthurS
said by ArthurS:

The copay here in Ontario is absolutely ridiculous, and often more than what the machine is worth, but alas, the government likes giving lots of money to medical suppliers!

The co-payment is $25%. It is covered by most drug plans. ODSP recipients have the co-payment covered 100%.
--
Need-based health care not greed-based health care.


ArthurS
Watch Those Blinking Lights
Premium
join:2000-10-28
Hamilton, ON
said by DKS:

said by ArthurS:

The copay here in Ontario is absolutely ridiculous, and often more than what the machine is worth, but alas, the government likes giving lots of money to medical suppliers!

The co-payment is $25%. It is covered by most drug plans. ODSP recipients have the co-payment covered 100%.

Indeed, ADP covers 75% of the cost of the equipment up to a max of $780. However providers take advantage of that and charge ridiculous amounts for the machines they offer. Want to upgrade to anything beyond their "basic" machine, and you pay dearly. I asked what it would cost to upgrade to the ResMed S9 and just about fell off my chair!

In my case, ProResp wanted to charge the "full price" of $1040 for a machine, hose, and a basic mask ($260 copay, $780 covered by ADP). Same equipment from the USA can be bought from a dealer for $495, and that is with my choice of mask. I did a bit more digging, and found the same machine on auction, brand new, for $125, add a mask for another $100.

I don't have a drug plan, and ended up paying less and getting a better machine and mask. A couple hours of research saved me a lot of money. My sleep doctor was incredibly supportive and impressed.


Thane_Bitter
Inquire within
Premium
join:2005-01-20
reply to DKS
Yes, if the hose was the only problem, one would have the expectation that replacing it should fix the machine.


DKS
Damn Kidney Stones
Premium,ExMod 2002
join:2001-03-22
Owen Sound, ON
kudos:2
reply to ArthurS
said by ArthurS:

said by DKS:

said by ArthurS:

The copay here in Ontario is absolutely ridiculous, and often more than what the machine is worth, but alas, the government likes giving lots of money to medical suppliers!

The co-payment is $25%. It is covered by most drug plans. ODSP recipients have the co-payment covered 100%.

Indeed, ADP covers 75% of the cost of the equipment up to a max of $780. However providers take advantage of that and charge ridiculous amounts for the machines they offer. Want to upgrade to anything beyond their "basic" machine, and you pay dearly. I asked what it would cost to upgrade to the ResMed S9 and just about fell off my chair!

Why upgrade? A basic machine is all you need. I use a REMstar Basic M. Works well. I also lost a good bit of weight.

In my case, ProResp wanted to charge the "full price" of $1040 for a machine, hose, and a basic mask ($260 copay, $780 covered by ADP). Same equipment from the USA can be bought from a dealer for $495, and that is with my choice of mask. I did a bit more digging, and found the same machine on auction, brand new, for $125, add a mask for another $100.

You would buy used medical equipment? Caveat emptor.

I don't have a drug plan, and ended up paying less and getting a better machine and mask. A couple hours of research saved me a lot of money. My sleep doctor was incredibly supportive and impressed.

Again, you don't need more than a basic machine. You may want more, but it's completely unnecessary. I refuse to use the humidifier with mine, with my mould allergies. I use VitalAire as my supplier.
--
Need-based health care not greed-based health care.


ArthurS
Watch Those Blinking Lights
Premium
join:2000-10-28
Hamilton, ON
said by DKS:

Why upgrade? A basic machine is all you need. I use a REMstar Basic M. Works well. I also lost a good bit of weight.

I needed one with a humidifier, otherwise my sinuses flare up like crazy! I tried it without humidification once, I literally went through an entire box of kleenex the next day blowing my nose!

said by DKS:

You would buy used medical equipment? Caveat emptor.

Who said I was buying used equipment? This is brand new stuff, in the original packaging! Seek and you will find!

said by DKS:

Again, you don't need more than a basic machine. You may want more, but it's completely unnecessary. I refuse to use the humidifier with mine, with my mould allergies. I use VitalAire as my supplier.

For me a humidifier was necessary, and gave me a much more restful sleep. Everyone's needs are unique. To say it's completely unnecessary is nonsense, and if you use distilled water and keep your equipment clean, you should have zero mold problems.


Last Parade

join:2002-10-07
Port Colborne, ON
reply to DKS
said by DKS:

You would buy used medical equipment? Caveat emptor.

Where do you see that?

XaXiS

join:2009-08-15
Canada Eh
reply to XaXiS
Mine has a humidifier but I don't use it much. Distilled water is a pain in the ass to find out here. I really don't think that there is a leak anywhere, I just tried soaking the hose (wow that sounds bad lol) and nothing shows. It is so weird that I got diagnosed back in 2002 and I was skinnier back then, but I know people who are like at tops !80 and they have it as well.

My first machine was at 6 this one is at 11 I think. Sometimes I can even realize that I am not breathing if I haven't slept a lot. It's really odd. I might need to get a new bed I guess.

XaXiS

join:2009-08-15
Canada Eh
reply to XaXiS
I can't blame it on facial hair or lack thereof. LOL


DKS
Damn Kidney Stones
Premium,ExMod 2002
join:2001-03-22
Owen Sound, ON
kudos:2
reply to ArthurS
said by ArthurS:

For me a humidifier was necessary, and gave me a much more restful sleep. Everyone's needs are unique. To say it's completely unnecessary is nonsense, and if you use distilled water and keep your equipment clean, you should have zero mold problems.

Humidifiers are now standard, unfortunately, in Ontario. I am the complete opposite. I need "dry" or I will be full of sinus infection. And yes, humidifiers are unnecessary. People never used them for years.
--
Need-based health care not greed-based health care.

XaXiS

join:2009-08-15
Canada Eh
reply to XaXiS
Are you supposed to feel the air down your throat? I might need to be retested or something because I am not feeling it at all. I feel it in the nose of course and can talk normally. Before when I spoke, you could tell that it was going down the throat.


mazhurg
Premium
join:2004-05-02
Brighton, ON
Reviews:
·MTS
said by XaXiS:

Are you supposed to feel the air down your throat? I might need to be retested or something because I am not feeling it at all. I feel it in the nose of course and can talk normally. Before when I spoke, you could tell that it was going down the throat.

About the only way to ensure that the CPAP is operating normally is to take it for maintenance, unless you have a pressure measuring device. The #s given by the controls are just a settings, they do not indicate the actual numbers.

Also, if your needs have changed, again about the only way to confirm is to go see a sleep specialist where they can confirm that your prescribed pressures are still valid.

Sleep apnea does all around bad things to CV system. Don't take chances.

buttaknife

join:2007-06-01
reply to Last Parade
said by Last Parade:

said by DKS:

You would buy used medical equipment? Caveat emptor.

Where do you see that?

Selective reading
Expand your moderator at work


ArthurS
Watch Those Blinking Lights
Premium
join:2000-10-28
Hamilton, ON
reply to DKS

Re: [Serious] Sleep Apnea

said by DKS:

Humidifiers are now standard, unfortunately, in Ontario. I am the complete opposite. I need "dry" or I will be full of sinus infection. And yes, humidifiers are unnecessary. People never used them for years.

For me the humidifier makes all the difference between a wonderful day and an absolutely crappy day! Everyone's needs are unique. People didn't use humidifiers for years because many CPAP machines did not offer that option, and if they did, it was an expensive option not funded by the government or insurance companies, but that doesn't mean that people didn't need them. Likewise modern features like auto pressure adjustment, exhale relief, rainout reduction, low noise were not available either for many years, but that doesn't mean those options are completely unnecessary because we survived without them. Each advancement addresses the unique needs for each apnea sufferer. For some each feature makes all the difference between a mediocre sleep and a wonderful sleep. To each their own. To suggest that a feature is unnecessary is the equivalent of saying that the treatment should be all the same for all sleep apnea sufferers, ignorance is bliss. There are so many variants of sleep apnea, add the uniqueness of the human body, one size does not fit all.

XaXiS

join:2009-08-15
Canada Eh
reply to XaXiS
I keep getting the basic mask, respronics classic and the gel thing for the forehead always falls off. The masks are $200 and to replace the gel thing is $12. You would think that they would make it so it doesn't fall off but nooooooooo.

They tried to get me to buy a better brand but that was way too much money. I think it was like $450+


ArthurS
Watch Those Blinking Lights
Premium
join:2000-10-28
Hamilton, ON
said by XaXiS:

I keep getting the basic mask, respronics classic and the gel thing for the forehead always falls off. The masks are $200 and to replace the gel thing is $12. You would think that they would make it so it doesn't fall off but nooooooooo.

They tried to get me to buy a better brand but that was way too much money. I think it was like $450+

You can get the masks a lot cheaper in the USA. I'm very happy with my ResMed Swift II. It could very well be that what they were saying is that your mask was leaking, probably due to an improper fit. Nevertheless, if you have not had a checkup with your sleep doctor for a while, book an appointment, and bring your equipment in with you, they can test it and give you some advice on what to do. Perhaps they can do a sleep study with you using your equipment.


DKS
Damn Kidney Stones
Premium,ExMod 2002
join:2001-03-22
Owen Sound, ON
kudos:2
said by ArthurS:

You can get the masks a lot cheaper in the USA. I'm very happy with my ResMed Swift II. It could very well be that what they were saying is that your mask was leaking, probably due to an improper fit.

I have the same mask. It does have a small fit problem if you have facial hair. I find it slightly annoying but not a game stopper.

Nevertheless, if you have not had a checkup with your sleep doctor for a while, book an appointment, and bring your equipment in with you, they can test it and give you some advice on what to do. Perhaps they can do a sleep study with you using your equipment.

Or better, take it back to the place where you purchased it and ask the respiratory technologist for assistance. Mine does it for free, at any time. My sleep specialist does not have anything to do with machines and adjustment.
--
Need-based health care not greed-based health care.


DKS
Damn Kidney Stones
Premium,ExMod 2002
join:2001-03-22
Owen Sound, ON
kudos:2
reply to XaXiS
said by XaXiS:

I keep getting the basic mask, respronics classic and the gel thing for the forehead always falls off. The masks are $200 and to replace the gel thing is $12. You would think that they would make it so it doesn't fall off but nooooooooo.

Fit issue. Take it back for a proper adjustment.
--
Need-based health care not greed-based health care.


DKS
Damn Kidney Stones
Premium,ExMod 2002
join:2001-03-22
Owen Sound, ON
kudos:2
reply to ArthurS
said by ArthurS:

Each advancement addresses the unique needs for each apnea sufferer.

Or is a marketing tool to make more money for the manufacturer...
--
Need-based health care not greed-based health care.


A Lurker
that's Ms Lurker btw
Premium
join:2007-10-27
Wellington N

1 recommendation

said by DKS:

Or is a marketing tool to make more money for the manufacturer...

You know, sometimes I think you are unyielding, and other times I just think you're an a**. Just because you don't need a humidifier on your machine doesn't mean others don't. No matter what others say here you just keep saying they don't need it. How nice it must be to know everything about everybody.

I don't use a machine that you're all discussing, but in the winter I need a humidifier when I sleep otherwise I wake up with huge sinus issues. Obviously I must be mistaken, it must be a marketing tool for my 40+ year old humidifier that my parents bought.